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| eye contact is getting so much better! |
Today we had a meeting about Elijah. The Speech Therapist, Occupational Therapist, Special ED teacher, Elijahs Service coordinator, His accessors from Bright Starts, and Phil Burrows the Head Chairman were all there. All had pages of reports on my son. You know what hard is, listing to someone read those reports, pages and pages of them. As an Adult knowing all those things they were saying were true. But some how when you read the symptoms. you lose the person. I mean Elijah isnt a speech delay, he isn't a sensory seeker, he is my son. They forgot to add how beautiful his eyes are, how he has amazing hair..how awesome his smile is. Or what a hard worker he is. or they forgot to mention what a snuggly guy he is, how big of a heart he has..how handsome he looks in a suit. Or how he never gives up no matter how hard something is for him.But i guess if we sat there and just talked about the good things about him he would never get better. So even though it was so very hard to sit in this meeting, holding back tears and listing to all the delays he has. I know its for the best. Elijah has an amazing team rooting for him. I feel so blessed. Its crazy during the week. we have so many providers coming into my home, invading my privacy. Totally out of my comfort zone..i miss the old days. The days i didnt have to plan my life around appointments.But you know what i dont miss? i dont miss my son not being able to give eye contact . I dont miss the constant tempers because he didnt know how to communicate his needs
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| he is starting to act silly to make us laugh |
I dont miss the physical outburst and aggressive behavior. I dont miss holding him while he cried in confusion because he didnt know what was going on. I dont miss feeling alone and overwhelmed because we could never leave him. i dont miss wondering if i would ever hear him talk. i dont miss the sensory outburst every time i changed him. It so funny how something so hard for me can be a blessing a thousand times in return. i mean look at this kid...
A few short months go he couldnt even look at a camera..and now he is giving me big cheesy grins!!!!!
He is running around naked cause he is well on his way to be potty trained..and some times will go on his own!!!
So the days i get a little down, and frustrated...i reminded myself how this silly, sweet, wonderful boy is worth any minor discomfort i may feel. Because even though parenting is rellly hard sometimes....its funny how easy one hug, smile or kiss erases it all away.
You're doing an amazing job with him Tracie!! So many parents wouldn't willingly make themselves vulnerable and their child would suffer. Eventually he'll get into a routine and it will all be a little easier :o)
ReplyDeletethank you! He is already getting so much better, its so exciting to me! And you are right, as this becomes more and more routine i see him improving alot. So proud of his progress!
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